I have just opened a facebook group called Parents Of Shunt Dependent Children Support Group. I have a 2 1/2 year old daughter who has had a shunt in her head now since she was 6 weeks old. I have opened this group to share stories and experiences with other parents who may be about to go through the same thing or have already experienced it. This could help other parents to become comfortable and gain knowledge from other peoples experiences as to what to expect or even ask questions as I know my doctors only told me certain things at the time of my daughters operation and afterwards so was left to find out other information myself. Please feel free to head over to the page and ad yourself even if you are an adult with a shunt and can offer us new shunt mums and dads some advice on how you have coped, and how it has effected your lives, this would be great.
Thank You for you time and look forward to hearing from you.